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Taking patient involvement seriously: a critical ethical analysis of participatory approaches in data-intensive medical research
BACKGROUND: Data-intensive research in medicine and healthcare such as health-related big data research (HBDR) implies that data from clinical routine, research and patient-reported data, but also non-medical social or demographic data, are aggregated and linked in order to optimize biomedical resea...
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| Publicado no: | BMC Med Inform Decis Mak |
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| Main Authors: | , , |
| Formato: | Artigo |
| Idioma: | Inglês |
| Publicado em: |
BioMed Central
2019
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| Assuntos: | |
| Acesso em linha: | https://ncbi.nlm.nih.gov/pmc/articles/PMC6482526/ https://ncbi.nlm.nih.gov/pubmed/31023321 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s12911-019-0799-7 |
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