Results from an online survey of adults with cystic fibrosis: Accessing and using life expectancy information

Cystic fibrosis (CF) is the one of the most common inherited diseases. It affects around 10,000 people in the UK, and the median survival age is 47. Recent developments making use of longitudinal patient registry data are producing more detailed and relevant information about predicted life expectan...

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Udgivet i:PLoS One
Main Authors: Keogh, Ruth H., Bilton, Diana, Cosgriff, Rebecca, Kavanagh, Dominic, Rayner, Oliver, Sedgwick, Philip M.
Format: Artigo
Sprog:Inglês
Udgivet: Public Library of Science 2019
Fag:
Research Article
Online adgang:https://ncbi.nlm.nih.gov/pmc/articles/PMC6461271/
https://ncbi.nlm.nih.gov/pubmed/30978192
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1371/journal.pone.0213639
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