טוען...
Choosing not to know: accounts of non-engagement with pre-symptomatic testing for Machado-Joseph disease
This paper reports accounts from people at-risk for, or affected by, Machado-Joseph disease, and their family members, about their decisions not to seek pre-symptomatic testing, therefore remaining (for the time) uninformed about their genetic status. We draw on individual and family semi-structured...
שמור ב:
| הוצא לאור ב: | Eur J Hum Genet |
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| Main Authors: | , , , |
| פורמט: | Artigo |
| שפה: | Inglês |
| יצא לאור: |
Springer International Publishing
2018
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| נושאים: | |
| גישה מקוונת: | https://ncbi.nlm.nih.gov/pmc/articles/PMC6460576/ https://ncbi.nlm.nih.gov/pubmed/30573801 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1038/s41431-018-0308-y |
| תגים: |
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