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A Tale of Two Capacities: Including Children and Decisionally Vulnerable Adults in Biomedical Research

The participation of individuals who lack decision-making capacity is essential for advancing genomics research and neuroscience, but raises ethical and legal challenges relating to vulnerability, consent, and exclusion. Capacity differences between populations and individuals, the dynamics of capac...

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Shranjeno v:
Bibliografske podrobnosti
izdano v:Front Genet
Main Authors: Dalpé, Gratien, Thorogood, Adrian, Knoppers, Bartha Maria
Format: Artigo
Jezik:Inglês
Izdano: Frontiers Media S.A. 2019
Teme:
Online dostop:https://ncbi.nlm.nih.gov/pmc/articles/PMC6459892/
https://ncbi.nlm.nih.gov/pubmed/31024616
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.3389/fgene.2019.00289
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