Italian translation, cultural adaptation, and pilot testing of a questionnaire to assess family burden in inherited ichthyoses

BACKGROUND: Inherited ichthyoses are rare disorders characterized by generalized skin scaling. Among them, autosomal recessive congenital ichthyoses (ARCI) form a major subgroup presenting lifelong and severely disabling cutaneous and extracutaneous features and symptoms for which no curative treatm...

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Detalhes bibliográficos
Publicado no:Ital J Pediatr
Principais autores: El Hachem, May, Abeni, Damiano, Diociaiuti, Andrea, Rotunno, Roberta, Gesualdo, Francesco, Zambruno, Giovanna, Bodermer, Christine
Formato: Artigo
Idioma:Inglês
Publicado em: BioMed Central 2019
Assuntos:
Research
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC6381706/
https://ncbi.nlm.nih.gov/pubmed/30782190
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13052-019-0618-x
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