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Italian translation, cultural adaptation, and pilot testing of a questionnaire to assess family burden in inherited ichthyoses
BACKGROUND: Inherited ichthyoses are rare disorders characterized by generalized skin scaling. Among them, autosomal recessive congenital ichthyoses (ARCI) form a major subgroup presenting lifelong and severely disabling cutaneous and extracutaneous features and symptoms for which no curative treatm...
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| Publicado no: | Ital J Pediatr |
|---|---|
| Principais autores: | , , , , , , |
| Formato: | Artigo |
| Idioma: | Inglês |
| Publicado em: |
BioMed Central
2019
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| Assuntos: | |
| Acesso em linha: | https://ncbi.nlm.nih.gov/pmc/articles/PMC6381706/ https://ncbi.nlm.nih.gov/pubmed/30782190 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13052-019-0618-x |
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