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A qualitative study of the impact of plexiform neurofibromas on need fulfilment in adults with neurofibromatosis type 1

OBJECTIVE: To explore the impact of plexiform neurofibromas on the lives of adults with neurofibromatosis type 1. BACKGROUND: Neurofibromatosis type 1 is a complex neurogenetic syndrome that affects many aspects of health and functioning. A common manifestation of neurofibromatosis type 1 is plexifo...

पूर्ण विवरण

में बचाया:
ग्रंथसूची विवरण
में प्रकाशित:SAGE Open Med
मुख्य लेखकों: Heaney, Alice, Wilburn, Jeanette, Langmead, Shannon, Blakeley, Jaishri, Huson, Susan, Jim, Carly, McKenna, Stephen P
स्वरूप: Artigo
भाषा:Inglês
प्रकाशित: SAGE Publications 2019
विषय:
ऑनलाइन पहुंच:https://ncbi.nlm.nih.gov/pmc/articles/PMC6378462/
https://ncbi.nlm.nih.gov/pubmed/30800298
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1177/2050312119829680
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