Emotional experience in parents of children with Zellweger spectrum disorders: A qualitative study

Zellweger spectrum disorders (ZSDs) are rare, debilitating genetic diseases of peroxisome biogenesis that require constant management and lifelong care. Nevertheless, the experience of family caregivers for children diagnosed with ZSD is not well understood. In this study, we sought to characterize...

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Spremljeno u:
Bibliografski detalji
Izdano u:Mol Genet Metab Rep
Glavni autori: Bose, Mousumi, Mahadevan, Meena, Schules, Dana R., Coleman, Rory K., Gawron, Kelly M., Gamble, Melissa B., Roullet, Jean-Baptiste, Gibson, K. Michael, Rizzo, William B.
Format: Artigo
Jezik:Inglês
Izdano: Elsevier 2019
Teme:
Research Paper
Online pristup:https://ncbi.nlm.nih.gov/pmc/articles/PMC6377409/
https://ncbi.nlm.nih.gov/pubmed/30815361
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1016/j.ymgmr.2019.100459
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