Desmoid fibromatosis through the patients’ eyes: time to change the focus and organisation of care?

PURPOSE: Desmoid fibromatosis (DF) is a rare, unpredictable disease with no established, evidence-based treatments. Individual management is based on consensus algorithms. This study aimed to examine the specific health-related quality of life challenges faced by DF patients, current experiences and...

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Publicat a:Support Care Cancer
Autors principals: Husson, Olga, Younger, Eugenie, Dunlop, Alison, Dean, Lucy, Strauss, Dirk C., Benson, Charlotte, Hayes, Andy J., Miah, Aisha, van Houdt, Winan, Zaidi, Shane, Smith, Myles, Williams, John, Jones, Robin L., van der Graaf, Winette T. A.
Format: Artigo
Idioma:Inglês
Publicat: Springer Berlin Heidelberg 2018
Matèries:
Original Article
Accés en línia:https://ncbi.nlm.nih.gov/pmc/articles/PMC6373240/
https://ncbi.nlm.nih.gov/pubmed/30155568
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/s00520-018-4386-8
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