The current landscape of European registries for rare endocrine conditions

OBJECTIVE: To identify cross-border international registries for rare endocrine conditions that are led from Europe and to understand the extent of engagement with these registries within a network of reference centres (RCs) for rare endocrine conditions. METHODS: Database search of international re...

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Bibliografiske detaljer
Udgivet i:Eur J Endocrinol
Main Authors: Ali, S R, Bryce, J, Cools, M, Korbonits, M, Beun, J G, Taruscio, D, Danne, T, Dattani, M, Dekkers, O M, Linglart, A, Netchine, I, Nordenstrom, A, Patocs, A, Persani, L, Reisch, N, Smyth, A, Sumnik, Z, Visser, W E, Hiort, O, Pereira, A M, Ahmed, S F
Format: Artigo
Sprog:Inglês
Udgivet: Bioscientifica Ltd 2018
Fag:
Clinical Study
Online adgang:https://ncbi.nlm.nih.gov/pmc/articles/PMC6347278/
https://ncbi.nlm.nih.gov/pubmed/30407922
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1530/EJE-18-0861
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