The international diffuse intrinsic pontine glioma registry: an infrastructure to accelerate collaborative research for an orphan disease

Diffuse intrinsic pontine glioma (DIPG), a rare, often fatal childhood brain tumor, remains a major therapeutic challenge. In 2012, investigators, funded by the DIPG Collaborative (a philanthropic partnership among 29 private foundations), launched the International DIPG Registry (IDIPGR) to advance...

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Veröffentlicht in:J Neurooncol
Hauptverfasser: Baugh, Joshua, Bartels, Ute, Leach, James, Jones, Blaise, Chaney, Brooklyn, Warren, Katherine E., Kirkendall, Jenavieve, Doughman, Renee, Hawkins, Cynthia, Miles, Lili, Fuller, Christine, Hassall, Tim, Bouffet, Eric, Lane, Adam, Hargrave, Darren, Grill, Jacques, Hoffman, Lindsey M., Jones, Chris, Towbin, Alex, Savage, Sharon A., Monje, Michelle, Li, Xiao‑Nan, Ziegler, David S., van Zanten, Sophie Veldhuijzen, Kramm, Christof M., van Vuurden, Dannis G., Fouladi, Maryam
Format: Artigo
Sprache:Inglês
Veröffentlicht: 2017
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Article
Online Zugang:https://ncbi.nlm.nih.gov/pmc/articles/PMC6343830/
https://ncbi.nlm.nih.gov/pubmed/28093680
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/s11060-017-2372-5
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