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People-powered data collaboratives: fueling data science with the health-related experiences of individuals
The creation of people-driven data collaboratives, with governance structures that enable participants to have a meaningful voice in issues surrounding the use of their own data, is a novel strategy to harness our growing capacity to develop and maintain immense data assets from the real health expe...
Guardado en:
| Publicado en: | J Am Med Inform Assoc |
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| Autores principales: | , |
| Formato: | Artigo |
| Lenguaje: | Inglês |
| Publicado: |
Oxford University Press
2018
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| Materias: | |
| Acceso en línea: | https://ncbi.nlm.nih.gov/pmc/articles/PMC6339513/ https://ncbi.nlm.nih.gov/pubmed/30576557 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1093/jamia/ocy159 |
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