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“Living an Obstacle Course”: A Qualitative Study Examining the Experiences of Caregivers of Children with Rett Syndrome

Background: Rett syndrome has considerable effects on the quality of life of affected children, impairing everyday activities and potentially impacting the life of both the caregivers and the family. Our aim was to explore the experiences of a group of caregivers of children with Rett syndrome with...

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Bibliografiske detaljer
Udgivet i:Int J Environ Res Public Health
Main Authors: Palacios-Ceña, Domingo, Famoso-Pérez, Pilar, Salom-Moreno, Jaime, Carrasco-Garrido, Pilar, Pérez-Corrales, Jorge, Paras-Bravo, Paula, Güeita-Rodriguez, Javier
Format: Artigo
Sprog:Inglês
Udgivet: MDPI 2018
Fag:
Online adgang:https://ncbi.nlm.nih.gov/pmc/articles/PMC6338949/
https://ncbi.nlm.nih.gov/pubmed/30585176
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.3390/ijerph16010041
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