Recontacting patients in clinical genetics services: recommendations of the European Society of Human Genetics

Technological advances have increased the availability of genomic data in research and the clinic. If, over time, interpretation of the significance of the data changes, or new information becomes available, the question arises as to whether recontacting the patient and/or family is indicated. The P...

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發表在:Eur J Hum Genet
Main Authors: Carrieri, Daniele, Howard, Heidi C., Benjamin, Caroline, Clarke, Angus J., Dheensa, Sandi, Doheny, Shane, Hawkins, Naomi, Halbersma-Konings, Tanya F., Jackson, Leigh, Kayserili, Hülya, Kelly, Susan E., Lucassen, Anneke M., Mendes, Álvaro, Rial-Sebbag, Emmanuelle, Stefánsdóttir, Vigdís, Turnpenny, Peter D., van El, Carla G., van Langen, Irene M., Cornel, Martina C., Forzano, Francesca
格式: Artigo
語言:Inglês
出版: Springer International Publishing 2018
主題:
Policy
在線閱讀:https://ncbi.nlm.nih.gov/pmc/articles/PMC6336881/
https://ncbi.nlm.nih.gov/pubmed/30310124
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1038/s41431-018-0285-1
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