A preliminary study of telemedicine for patients with hepatic glycogen storage disease and their healthcare providers: from bedside to home site monitoring

BACKGROUND: The purpose of this project was to develop a telemedicine platform that supports home site monitoring and integrates biochemical, physiological, and dietary parameters for individual patients with hepatic glycogen storage disease (GSD). METHODS AND RESULTS: The GSD communication platform...

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Veröffentlicht in:J Inherit Metab Dis
Hauptverfasser: Hoogeveen, Irene J., Peeks, Fabian, de Boer, Foekje, Lubout, Charlotte M. A., de Koning, Tom J., te Boekhorst, Sebastiaan, Zandvoort, Robert-Jan, Burghard, Rob, van Spronsen, Francjan J., Derks, Terry G. J.
Format: Artigo
Sprache:Inglês
Veröffentlicht: Springer Netherlands 2018
Schlagworte:
Glycogen Storage Disease
Online Zugang:https://ncbi.nlm.nih.gov/pmc/articles/PMC6326981/
https://ncbi.nlm.nih.gov/pubmed/29600495
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/s10545-018-0167-2
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