Psychosocial Functioning in Parents of MPS III Patients

Background: Mucopolysaccharidosis type III (MPS III or Sanfilippo syndrome) is a lysosomal storage disease resulting in progressive neurocognitive decline during childhood and early demise. Its diagnosis may have a great impact on parents, potentially leading to psychosocial problems such as anxiety...

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Udgivet i:JIMD Rep
Main Authors: Conijn, Thirsa, Nijmeijer, Stephanie C. M., van Oers, Hedy A., Wijburg, Frits A., Haverman, Lotte
Format: Artigo
Sprog:Inglês
Udgivet: Springer Berlin Heidelberg 2018
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Article
Online adgang:https://ncbi.nlm.nih.gov/pmc/articles/PMC6323010/
https://ncbi.nlm.nih.gov/pubmed/29980992
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/8904_2018_119
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