Developing a Conceptual, Reproducible, Rubric-Based Approach to Consent and Result Disclosure for Genetic Testing by Clinicians with Minimal Genetics Background

PURPOSE: In response to genetic testing being widely ordered by non-genetics clinicians, the Consent and Disclosure Recommendations (CADRe) Workgroup of the Clinical Genome Resource (ClinGen; clinicalgenome.org) developed guidance to facilitate communication about genetic testing and efficiently imp...

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Veröffentlicht in:Genet Med
Hauptverfasser: Ormond, Kelly E., Hallquist, Miranda L.G., Buchanan, Adam H., Dondanville, Danielle, Cho, Mildred K., Smith, Maureen, Roche, Myra, Brothers, Kyle B., Coughlin, Curtis R., Hercher, Laura, Hudgins, Louanne, Jamal, Seema, Levy, Howard P., Raskin, Misha, Stosic, Melissa, Uhlmann, Wendy, Wain, Karen E., Currey, Erin, Faucett, W. Andrew
Format: Artigo
Sprache:Inglês
Veröffentlicht: 2018
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Article
Online Zugang:https://ncbi.nlm.nih.gov/pmc/articles/PMC6320736/
https://ncbi.nlm.nih.gov/pubmed/29976988
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1038/s41436-018-0093-6
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