User Perspectives of a Web-Based Data-Sharing Platform (Open Humans) on Ethical Oversight in Participant-Led Research: Protocol for a Quantitative Study

BACKGROUND: Advances in medicine rely to a great extent on people’s willingness to share their data with researchers. With increasingly widespread use of digital technologies, several Web-based communities have emerged aiming to enable their users to share large amounts of data, some of which can po...

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Bibliographic Details
Published in:JMIR Res Protoc
Main Authors: Fadda, Marta, Jobin, Anna, Blasimme, Alessandro, Greshake Tzovaras, Bastian, Price Ball, Mad, Vayena, Effy
Format: Artigo
Language:Inglês
Published: JMIR Publications 2018
Subjects:
Protocol
Online Access:https://ncbi.nlm.nih.gov/pmc/articles/PMC6291678/
https://ncbi.nlm.nih.gov/pubmed/30487120
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.2196/10939
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