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“I Don’t Want to be Henrietta Lacks”: Diverse Patient Perspectives on Donating Biospecimens for Precision Medicine Research
PURPOSE: To determine whether patients distinguish between biospecimens and electronic health records (EHRs) when considering research participation to inform research protections. METHODS: We conducted 20 focus groups with individuals who identified as African American, Hispanic, Chinese, South Asi...
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| Pubblicato in: | Genet Med |
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| Autori principali: | , , , , , , , |
| Natura: | Artigo |
| Lingua: | Inglês |
| Pubblicazione: |
2018
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| Soggetti: | |
| Accesso online: | https://ncbi.nlm.nih.gov/pmc/articles/PMC6289900/ https://ncbi.nlm.nih.gov/pubmed/29887604 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1038/s41436-018-0032-6 |
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