Patient and observer reported outcome measures to evaluate health-related quality of life in inherited metabolic diseases: a scoping review

BACKGROUND: Health-related Quality of Life (HrQoL) is a multidimensional measure, which has gained clinical and social relevance. Implementation of a patient-centred approach to both clinical research and care settings, has increased the recognition of patient and/or observer reported outcome measur...

Deskribapen osoa

Gorde:
Xehetasun bibliografikoak
Argitaratua izan da:Orphanet J Rare Dis
Egile Nagusiak: Pascoal, Carlota, Brasil, Sandra, Francisco, Rita, Marques-da-Silva, Dorinda, Rafalko, Agnes, Jaeken, Jaak, Videira, Paula A., Barros, Luísa, dos Reis Ferreira, Vanessa
Formatua: Artigo
Hizkuntza:Inglês
Argitaratua: BioMed Central 2018
Gaiak:
Review
Sarrera elektronikoa:https://ncbi.nlm.nih.gov/pmc/articles/PMC6263554/
https://ncbi.nlm.nih.gov/pubmed/30486833
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-018-0953-9
Etiketak: Etiketa erantsi
Etiketarik gabe, Izan zaitez lehena erregistro honi etiketa jartzen!

Antzeko izenburuak