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Trans-Atlantic collaboration: applying lessons learned from the US CF Foundation quality improvement initiative

BACKGROUND: Between 2002 and 2006 France launched a national cystic fibrois (CF) newborn screening program; organized a network of specialized CF care centers; and issued CF diagnostic and treatment standards. To continue to build on this success in 2007 the Cystic Fibrosis Center of Expertise for R...

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Bibliografiske detaljer
Udgivet i:Orphanet J Rare Dis
Main Authors: Sabadosa, Kathryn A., Godfrey, Marjorie M., Marshall, Bruce C.
Format: Artigo
Sprog:Inglês
Udgivet: BioMed Central 2018
Fag:
Online adgang:https://ncbi.nlm.nih.gov/pmc/articles/PMC6225611/
https://ncbi.nlm.nih.gov/pubmed/29799379
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-017-0744-8
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