Patient reported outcomes in GNE myopathy: Incorporating a valid assessment of physical function in a rare disease

BACKGROUND: The aim of this analysis was to evaluate the psychometric properties of three patient reported outcome (PRO) measures characterizing physical function in GNE myopathy: the Human Activity Profile, the Inclusion Body Myositis Functional Rating Scale, and the Activities-specific Balance Con...

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Bibliografiska uppgifter
I publikationen:Disabil Rehabil
Huvudupphovsmän: Slota, Christina, Bevans, Margaret, Yang, Li, Shrader, Joseph, Joe, Galen, Carrillo, Nuria
Materialtyp: Artigo
Språk:Inglês
Publicerad: 2017
Ämnen:
Article
Länkar:https://ncbi.nlm.nih.gov/pmc/articles/PMC6166247/
https://ncbi.nlm.nih.gov/pubmed/28637129
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1080/09638288.2017.1283712
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