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Australia: regulating genomic data sharing to promote public trust

The regulation of genomic data sharing in Australia is a confusing mix of common law, legislation, ethical guidelines, and codes of practice. Beyond privacy laws, which only apply to genomic data that meets the definition of personal information, the key regulatory lever is the National Health and M...

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Bibliografiske detaljer
Udgivet i:Hum Genet
Main Authors: Eckstein, Lisa, Chalmers, Donald, Critchley, Christine, Jeanneret, Ruthie, McWhirter, Rebekah, Nielsen, Jane, Otlowski, Margaret, Nicol, Dianne
Format: Artigo
Sprog:Inglês
Udgivet: Springer Berlin Heidelberg 2018
Fag:
Online adgang:https://ncbi.nlm.nih.gov/pmc/articles/PMC6132638/
https://ncbi.nlm.nih.gov/pubmed/30116956
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/s00439-018-1914-z
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