Health Care Transition Experiences of Males with Childhood-onset Duchenne and Becker Muscular Dystrophy: Findings from the Muscular Dystrophy Surveillance Tracking and Research Network (MD STARnet) Health Care Transitions and Other Life Experiences Survey

INTRODUCTION: As the proportion of males with Duchenne muscular dystrophy (DMD) surviving into adulthood increases, more information is needed regarding their health care transition planning, an essential process for adolescents and young adults with DMD. The objective of this study was to describe...

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Detalhes bibliográficos
Publicado no:PLoS Curr
Main Authors: Paramsothy, Pangaja, Herron, Adrienne R., Lamb, Molly M., Kinnett, Kathi, Wolff, Jodi, Yang, Michele L., Oleszek, Joyce, Pandya, Shree, Kennedy, Annie, Cooney, Darryl, Fox, Deborah, Sheehan, Daniel
Formato: Artigo
Idioma:Inglês
Publicado em: Public Library of Science 2018
Assuntos:
Muscular Dystrophy
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC6112277/
https://ncbi.nlm.nih.gov/pubmed/30210936
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1371/currents.md.7de8a1c6798d7a48d38ea09bd624e1cd
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