Determinants of adherence and consequences of the transition from adolescence to adulthood among young people with severe haemophilia (TRANSHEMO): study protocol for a multicentric French national observational cross-sectional study

INTRODUCTION: Severe haemophilia is a rare disease characterised by spontaneous bleeding from early childhood, which may lead to various complications, especially in joints. It is nowadays possible to avoid these complications thanks to substitutive therapies for which the issue of adherence is majo...

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Foilsithe in:BMJ Open
Main Authors: Resseguier, Noémie, Rosso-Delsemme, Natacha, Beltran Anzola, Any, Baumstarck, Karine, Milien, Vanessa, Ardillon, Laurent, Bayart, Sophie, Berger, Claire, Bertrand, Marie-Anne, Biron-Andreani, Christine, Borel-Derlon, Annie, Castet, Sabine, Chamouni, Pierre, Claeyssens Donadel, Ségolène, De Raucourt, Emmanuelle, Desprez, Dominique, Falaise, Céline, Frotscher, Birgit, Gay, Valérie, Goudemand, Jenny, Gruel, Yves, Guillet, Benoît, Harroche, Annie, Hassoun, Abel, Huguenin, Yoann, Lambert, Thierry, Lebreton, Aurélien, Lienhart, Anne, Martin, Michèle, Meunier, Sandrine, Monpoux, Fabrice, Mourey, Guillaume, Negrier, Claude, Nguyen, Philippe, Nyombe, Placide, Oudot, Caroline, Pan-Petesch, Brigitte, Polack, Benoît, Rafowicz, Anne, Rauch, Antoine, Rivaud, Delphine, Schneider, Pascale, Spiegel, Alexandra, Stoven, Cecile, Tardy, Brigitte, Trossaërt, Marc, Valentin, Jean-Baptiste, Vanderbecken, Stéphane, Volot, Fabienne, Voyer-Ebrard, Annelise, Wibaut, Bénédicte, Leroy, Tanguy, Sannie, Thomas, Chambost, Hervé, Auquier, Pascal
Formáid: Artigo
Teanga:Inglês
Foilsithe: BMJ Publishing Group 2018
Ábhair:
Haematology (Incl Blood Transfusion)
Rochtain Ar Líne:https://ncbi.nlm.nih.gov/pmc/articles/PMC6067371/
https://ncbi.nlm.nih.gov/pubmed/30049701
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1136/bmjopen-2018-022409
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