The Facioscapulohumeral Muscular Dystrophy Functional Composite Outcome Measure

INTRODUCTION: We developed an evaluator-administered functional composite outcome measure (FSHD-COM) comprised of patient-identified areas of functional burden for future clinical trials. METHODS: We performed a prospective observational study of 41 FSHD participants at 2 sites. The FSHD-COM include...

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Detalhes bibliográficos
Publicado no:Muscle Nerve
Main Authors: Eichinger, Katy, Heatwole, Chad, Iyadurai, Stanley, King, Wendy, Baker, Lindsay, Heininger, Susanne, Bartlett, Amy, Dilek, Nuran, Martens, William B, McDermott, Michael, Kissel, John T., Tawil, Rabi, Statland, Jeffrey M.
Formato: Artigo
Idioma:Inglês
Publicado em: 2018
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Article
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC6066464/
https://ncbi.nlm.nih.gov/pubmed/29381807
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1002/mus.26088
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