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Challenges of palliative care in children with inborn metabolic diseases
BACKGROUND: Our objective was to evaluate children with metabolic diseases in paediatric palliative home care (PPC) and the process of decision-making. This study was conducted as single-centre retrospective cohort study of patients in the care of a large specialized PPC team. RESULTS: Between 01/20...
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| Pubblicato in: | Orphanet J Rare Dis |
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| Autori principali: | , , , , , |
| Natura: | Artigo |
| Lingua: | Inglês |
| Pubblicazione: |
BioMed Central
2018
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| Soggetti: | |
| Accesso online: | https://ncbi.nlm.nih.gov/pmc/articles/PMC6038293/ https://ncbi.nlm.nih.gov/pubmed/29986738 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-018-0868-5 |
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