Systematic literature review and assessment of patient-reported outcome instruments in sickle cell disease

BACKGROUND: Sickle cell disease (SCD) is a chronic condition associated with high mortality and morbidity. It is characterized by acute clinical symptoms such as painful vaso-occlusive crises, which can impair health-related quality of life (HRQL). This study was conducted to identify validated pati...

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Veröffentlicht in:Health Qual Life Outcomes
Hauptverfasser: Sarri, Grammati, Bhor, Menaka, Abogunrin, Seye, Farmer, Caroline, Nandal, Savita, Halloway, Rashid, Revicki, Dennis A.
Format: Artigo
Sprache:Inglês
Veröffentlicht: BioMed Central 2018
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Research
Online Zugang:https://ncbi.nlm.nih.gov/pmc/articles/PMC5963009/
https://ncbi.nlm.nih.gov/pubmed/29784054
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s12955-018-0930-y
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