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Defining personal utility in genomics: A Delphi study
BACKGROUND: Individual genome sequencing results are valued by patients in ways distinct from clinical utility. Such outcomes have been described as components of “personal utility,” a concept that broadly encompasses patient-endorsed benefits, that is operationally defined as non-clinical outcomes....
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| Publicado no: | Clin Genet |
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| Main Authors: | , , , , , , , |
| Formato: | Artigo |
| Idioma: | Inglês |
| Publicado em: |
2017
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| Assuntos: | |
| Acesso em linha: | https://ncbi.nlm.nih.gov/pmc/articles/PMC5960986/ https://ncbi.nlm.nih.gov/pubmed/28218387 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1111/cge.12998 |
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