Mitochondrial disease patient motivations and barriers to participate in clinical trials

BACKGROUND: Clinical treatment trials are increasingly being designed in primary mitochondrial disease (PMD), a phenotypically and genetically heterogeneous collection of inherited multi- system energy deficiency disorders that lack effective therapy. We sought to identify motivating factors and bar...

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Udgivet i:PLoS One
Main Authors: Zolkipli-Cunningham, Zarazuela, Xiao, Rui, Stoddart, Amy, McCormick, Elizabeth M., Holberts, Amy, Burrill, Natalie, McCormack, Shana, Williams, Lauren, Wang, Xiaoyan, Thompson, John L. P., Falk, Marni J.
Format: Artigo
Sprog:Inglês
Udgivet: Public Library of Science 2018
Fag:
Research Article
Online adgang:https://ncbi.nlm.nih.gov/pmc/articles/PMC5957366/
https://ncbi.nlm.nih.gov/pubmed/29771953
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1371/journal.pone.0197513
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