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Worries and needs of adults and parents of adults with neurofibromatosis type 1

Neurofibromatosis type 1 (NF1) is a neurocutaneous disorder associated with lifelong tumor growth propensity and neurocognitive impairments. Although follow‐up of adults with NF1 often focuses on tumor growth, follow‐up of cognitive or social problems and other NF1‐related comorbidity is often not a...

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Bibliografische gegevens
Gepubliceerd in:Am J Med Genet A
Hoofdauteurs: Rietman, Andre B., van Helden, Hanneke, Both, Pauline H., Taal, Walter, Legerstee, Jeroen S., van Staa, AnneLoes, Moll, Henriette A., Oostenbrink, Rianne, van Eeghen, Agnies M.
Formaat: Artigo
Taal:Inglês
Gepubliceerd in: John Wiley and Sons Inc. 2018
Onderwerpen:
Online toegang:https://ncbi.nlm.nih.gov/pmc/articles/PMC5947156/
https://ncbi.nlm.nih.gov/pubmed/29681082
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1002/ajmg.a.38680
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