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Development of the Impact of Juvenile Metachromatic Leukodystrophy on Physical Activities scale
BACKGROUND: Metachromatic leukodystrophy (MLD) is a rare disease with three forms based on the age at onset of signs and symptoms. The objective of this study was to develop a caregiver-reported clinical outcome assessment that measures impairments in physical functioning related to activities of da...
Enregistré dans:
| Publié dans: | J Patient Rep Outcomes |
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| Auteurs principaux: | , , , |
| Format: | Artigo |
| Langue: | Inglês |
| Publié: |
Springer International Publishing
2018
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| Sujets: | |
| Accès en ligne: | https://ncbi.nlm.nih.gov/pmc/articles/PMC5934920/ https://ncbi.nlm.nih.gov/pubmed/29757307 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s41687-018-0041-x |
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