Exploring Opportunities for Primary Outpatient Palliative Care for Adults with Cystic Fibrosis: A Mixed-Methods Study of Patients' Needs

Background: Persons with cystic fibrosis (CF) experience high morbidity and mortality, yet little is known about their palliative care needs and how clinicians may address these needs. Objectives: (1) To identify palliative care and advance care planning needs of patients with CF and their families;...

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Publicat a:J Palliat Med
Autors principals: Hobler, Mara R., Engelberg, Ruth A., Curtis, J. Randall, Ramos, Kathleen J., Zander, Miriam I., Howard, Shacole S., Goss, Christopher H., Aitken, Moira L.
Format: Artigo
Idioma:Inglês
Publicat: Mary Ann Liebert, Inc. 2018
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Original Articles
Accés en línia:https://ncbi.nlm.nih.gov/pmc/articles/PMC5915258/
https://ncbi.nlm.nih.gov/pubmed/29298400
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1089/jpm.2017.0259
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