Decreased quality of life and societal impact of cryopyrin-associated periodic syndrome treated with canakinumab: a questionnaire based cohort study

BACKGROUND: Cryopyrin-associated periodic syndrome (CAPS) is a rare disease. Knowledge on the quality of life (QoL) and the disease’s societal impact is limited. Canakinumab is used in increasing frequency for the treatment of CAPS. METHODS: Observational study in Dutch CAPS patients. Patients compl...

Full description

Saved in:
Bibliographic Details
Published in:Orphanet J Rare Dis
Main Authors: Mulders-Manders, Catharina M., Kanters, Tim A., van Daele, Paul L. A., Hoppenreijs, Esther, Legger, G. Elizabeth, van Laar, Jan A. M., Simon, Anna, Hakkaart-van Roijen, Leona
Format: Artigo
Language:Inglês
Published: BioMed Central 2018
Subjects:
Research
Online Access:https://ncbi.nlm.nih.gov/pmc/articles/PMC5910566/
https://ncbi.nlm.nih.gov/pubmed/29678136
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-018-0799-1
Tags: Add Tag
No Tags, Be the first to tag this record!

Similar Items