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Difficult Conversations: Discussing Prognosis with Children with Cystic Fibrosis

BACKGROUND: Despite the chronic, progressive, and life-threatening nature of cystic fibrosis (CF), there are no guidelines for when and how to communicate prognosis to children with CF. METHODS: Semi-structured interviews with young adults with CF, parents of young adults with CF, and multidisciplin...

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Detalhes bibliográficos
Publicado no:Pediatr Pulmonol
Main Authors: Farber, Julia Gray, Prieur, Mary G., Roach, Christine, Shay, Rosemary, Walter, Michelle, Borowitz, Drucy, Dellon, Elisabeth P.
Formato: Artigo
Idioma:Inglês
Publicado em: 2018
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Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC5904004/
https://ncbi.nlm.nih.gov/pubmed/29528566
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1002/ppul.23975
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