Adding patient-reported outcomes to a multisite registry to quantify quality of life and experiences of disease and treatment for youth with juvenile idiopathic arthritis

BACKGROUND: Children with Juvenile Idiopathic Arthritis (JIA) often have poor health-related quality of life (HRQOL) despite advances in treatment. Patient-centered research may shed light on how patient experiences of treatment and disease contribute to HRQOL, pinpointing directions for improving c...

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Dettagli Bibliografici
Pubblicato in:J Patient Rep Outcomes
Autori principali: Weitzman, Elissa R., Wisk, Lauren E., Salimian, Parissa K., Magane, Kara M., Dedeoglu, Fatma, Hersh, Aimee O., Kimura, Yukiko, Mandl, Kenneth D., Ringold, Sarah, Natter, Marc
Natura: Artigo
Lingua:Inglês
Pubblicazione: Springer International Publishing 2018
Soggetti:
Research
Accesso online:https://ncbi.nlm.nih.gov/pmc/articles/PMC5891162/
https://ncbi.nlm.nih.gov/pubmed/29645010
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s41687-017-0025-2
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