Understanding the Need for Assistance with Survey Completion in People with Huntington Disease

PURPOSE: In Huntington disease (HD), motor, cognitive and psychiatric changes can have a detrimental impact on health-related quality of life (HRQOL). The purpose of this paper is to describe the extent and type of assistance needed to complete online HRQOL surveys, and the impact of assistance on H...

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Опубликовано в: :Qual Life Res
Главные авторы: Hahn, Elizabeth A., Downing, Nancy R., Stout, Julie C., Paulsen, Jane S., Ready, Becky, Goodnight, Siera, Lai, Jin-Shei, Miner, Jennifer A., Carlozzi, Noelle E.
Формат: Artigo
Язык:Inglês
Опубликовано: 2017
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Article
Online-ссылка:https://ncbi.nlm.nih.gov/pmc/articles/PMC5845783/
https://ncbi.nlm.nih.gov/pubmed/29214414
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/s11136-017-1747-6
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