The Patient Reported Outcomes, Burdens and Experiences (PROBE) Project: development and evaluation of a questionnaire assessing patient reported outcomes in people with haemophilia

BACKGROUND: The interest of health care agencies, private payers and policy makers for patient-reported outcomes (PRO) is continuously increasing. There is a substantial need to improve capacity to collect and interpret relevant PRO data to support implementation of patient-centered research and opt...

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Detalles Bibliográficos
Publicado en:Pilot Feasibility Stud
Autores principales: Skinner, MW., Chai-Adisaksopha, C., Curtis, R., Frick, N., Nichol, M., Noone, D., O’Mahony, B., Page, D., Stonebraker, J. S., Iorio, A.
Formato: Artigo
Lenguaje:Inglês
Publicado: BioMed Central 2018
Materias:
Research
Acceso en línea:https://ncbi.nlm.nih.gov/pmc/articles/PMC5828307/
https://ncbi.nlm.nih.gov/pubmed/29497561
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s40814-018-0253-0
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