Principles for interactions with biopharmaceutical companies: the development of guidelines for patient advocacy organizations in the field of rare diseases

BACKGROUND: Rare diseases are a global public health concern, affecting an estimated 350 million individuals. Only 5% of approximately 7000 known rare diseases have a treatment, and only about half have a patient advocacy organization. Biopharmaceutical companies face complex challenges in developin...

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Veröffentlicht in:Orphanet J Rare Dis
Hauptverfasser: Stein, Susan, Bogard, Elizabeth, Boice, Nicole, Fernandez, Vivian, Field, Tessa, Gilstrap, Alan, Kahn, Susan R., Larkindale, Jane, Mathieson, Toni
Format: Artigo
Sprache:Inglês
Veröffentlicht: BioMed Central 2018
Schlagworte:
Research
Online Zugang:https://ncbi.nlm.nih.gov/pmc/articles/PMC5778794/
https://ncbi.nlm.nih.gov/pubmed/29357903
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-018-0761-2
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