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An overview of the impact of rare disease characteristics on research methodology
BACKGROUND: About 30 million individuals in the United States are living with a rare disease, which by definition have a prevalence of 200,000 or fewer cases in the United States ([National Organization for Rare Disorders], [About NORD], [2016]). Disease heterogeneity and geographic dispersion add t...
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| Publicado no: | Orphanet J Rare Dis |
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| Main Authors: | , , |
| Formato: | Artigo |
| Idioma: | Inglês |
| Publicado em: |
BioMed Central
2018
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| Assuntos: | |
| Acesso em linha: | https://ncbi.nlm.nih.gov/pmc/articles/PMC5775563/ https://ncbi.nlm.nih.gov/pubmed/29351763 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-017-0755-5 |
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