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Treatment Adherence and Psychological Wellbeing in Maternal Carers of Children with Phenylketonuria (PKU)

Phenylketonuria (PKU), a rare metabolic disorder, causes cognitive impairment unless treated with a strict, protein-restricted diet, but few studies have examined the relationship between treatment compliance and parental wellbeing. In the present study, 46 primary caregivers of children with PKU co...

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Publicado en:JIMD Rep
Main Authors: Medford, Emma, Hare, Dougal Julian, Carpenter, Katie, Rust, Stewart, Jones, Simon, Wittkowski, Anja
Formato: Artigo
Idioma:Inglês
Publicado: Springer Berlin Heidelberg 2017
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Acceso en liña:https://ncbi.nlm.nih.gov/pmc/articles/PMC5740045/
https://ncbi.nlm.nih.gov/pubmed/28382600
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/8904_2017_23
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