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Clinical genomics, big data, and electronic medical records: reconciling patient rights with research when privacy and science collide

Widespread use of medical records for research, without consent, attracts little scrutiny compared to biospecimen research, where concerns about genomic privacy prompted recent federal proposals to mandate consent. This paper explores an important consequence of the proliferation of electronic healt...

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Detalhes bibliográficos
Publicado no:J Law Biosci
Main Authors: Kulynych, Jennifer, Greely, Henry T.
Formato: Artigo
Idioma:Inglês
Publicado em: Oxford University Press 2017
Assuntos:
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC5570692/
https://ncbi.nlm.nih.gov/pubmed/28852559
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1093/jlb/lsw061
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