Participation of adults with disorders/differences of sex development (DSD) in the clinical study dsd-LIFE: design, methodology, recruitment, data quality and study population

BACKGROUND: dsd-LIFE is a comprehensive cross-sectional clinical outcome study of individuals with disorders/differences of sex development (DSD). This study focuses on various rare genetic conditions characterized by impaired gonadal or adrenal functionality. METHODS/DESIGN: The study aims to asses...

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Vydáno v:BMC Endocr Disord
Hlavní autoři: Röhle, Robert, Gehrmann, Katharina, Szarras-Czapnik, Maria, Claahsen-van der Grinten, Hedi, Pienkowski, Catherine, Bouvattier, Claire, Cohen-Kettenis, Peggy, Nordenström, Anna, Thyen, Ute, Köhler, Birgit
Médium: Artigo
Jazyk:Inglês
Vydáno: BioMed Central 2017
Témata:
Study Protocol
On-line přístup:https://ncbi.nlm.nih.gov/pmc/articles/PMC5562972/
https://ncbi.nlm.nih.gov/pubmed/28821302
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s12902-017-0198-y
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