The Myotonic Dystrophy Health Index: Initial Evaluation of a New Outcome Measure

INTRODUCTION: In preparation for clinical trials we examine the validity, reliability, and patient understanding of the Myotonic Dystrophy Health Index (MDHI). METHODS: Initially we partnered with 278 myotonic dystrophy type-1 (DM1) patients and identified the most relevant questions for the MDHI. N...

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發表在:Muscle Nerve
Main Authors: Heatwole, Chad, Bode, Rita, Johnson, Nicholas, Dekdebrun, Jeanne, Dilek, Nuran, Heatwole, Mark, Hilbert, James E., Luebbe, Elizabeth, Martens, William, McDermott, Michael P., Rothrock, Nan, Thornton, Charles, Vickrey, Barbara G., Victorson, David, Moxley, Richard
格式: Artigo
語言:Inglês
出版: 2014
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在線閱讀:https://ncbi.nlm.nih.gov/pmc/articles/PMC5551891/
https://ncbi.nlm.nih.gov/pubmed/24142420
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1002/mus.24097
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