Quality of Life and Associated Factors in Patients with Marfan Syndrome: The GenTAC registry

BACKGROUND: Previous small studies suggested reduced quality of life (QOL) for people with Marfan syndrome (MFS) compared to those without MFS. The national registry of Genetically Triggered Thoracic Aortic Aneurysms and Cardiovascular Conditions (GenTAC) is a longitudinal observational cohort study...

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Bibliografiske detaljer
Udgivet i:J Am Coll Cardiol
Main Authors: Goldfinger, Judith Z., Preiss, Liliana R., Devereux, Richard B., Roman, Mary J., Hendershot, Tabitha P., Kroner, Barbara L., Eagle, Kim A.
Format: Artigo
Sprog:Inglês
Udgivet: 2017
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Article
Online adgang:https://ncbi.nlm.nih.gov/pmc/articles/PMC5519341/
https://ncbi.nlm.nih.gov/pubmed/28595698
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1016/j.jacc.2017.04.026
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