A carregar...

Development of newborn screening connect (NBS connect): a self-reported patient registry and its role in improvement of care for patients with inherited metabolic disorders

BACKGROUND: Newborn Screening Connect (NBS Connect) is a web-based self-reported patient registry and resource for individuals and families affected by disorders included in the newborn screening panel. NBS Connect was launched in 2012 by Emory University after years of planning and grassroots work...

ver descrição completa

Na minha lista:
Detalhes bibliográficos
Publicado no:Orphanet J Rare Dis
Main Authors: Osara, Yetsa, Coakley, Kathryn, Devarajan, Aishwarya, Singh, Rani H.
Formato: Artigo
Idioma:Inglês
Publicado em: BioMed Central 2017
Assuntos:
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC5517813/
https://ncbi.nlm.nih.gov/pubmed/28724394
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-017-0684-3
Tags: Adicionar Tag
Sem tags, seja o primeiro a adicionar uma tag!