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De-identified genomic data sharing: the research participant perspective

Combining datasets into larger and separate datasets is becoming increasingly common, and personal identifiers are often removed in order to maintain participant anonymity. Views of research participants on the use of de-identified data in large research datasets are important for future projects, s...

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Détails bibliographiques
Publié dans:J Community Genet
Auteurs principaux: Goodman, Deborah, Johnson, Catherine O., Bowen, Deborah, Smith, Megan, Wenzel, Lari, Edwards, Karen
Format: Artigo
Langue:Inglês
Publié: Springer Berlin Heidelberg 2017
Sujets:
Accès en ligne:https://ncbi.nlm.nih.gov/pmc/articles/PMC5496839/
https://ncbi.nlm.nih.gov/pubmed/28382417
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/s12687-017-0300-1
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