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De-identified genomic data sharing: the research participant perspective

Combining datasets into larger and separate datasets is becoming increasingly common, and personal identifiers are often removed in order to maintain participant anonymity. Views of research participants on the use of de-identified data in large research datasets are important for future projects, s...

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Detalles Bibliográficos
Publicado en:J Community Genet
Main Authors: Goodman, Deborah, Johnson, Catherine O., Bowen, Deborah, Smith, Megan, Wenzel, Lari, Edwards, Karen
Formato: Artigo
Idioma:Inglês
Publicado: Springer Berlin Heidelberg 2017
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Acceso en liña:https://ncbi.nlm.nih.gov/pmc/articles/PMC5496839/
https://ncbi.nlm.nih.gov/pubmed/28382417
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/s12687-017-0300-1
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