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De-identified genomic data sharing: the research participant perspective

Combining datasets into larger and separate datasets is becoming increasingly common, and personal identifiers are often removed in order to maintain participant anonymity. Views of research participants on the use of de-identified data in large research datasets are important for future projects, s...

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Detalhes bibliográficos
Publicado no:J Community Genet
Main Authors: Goodman, Deborah, Johnson, Catherine O., Bowen, Deborah, Smith, Megan, Wenzel, Lari, Edwards, Karen
Formato: Artigo
Idioma:Inglês
Publicado em: Springer Berlin Heidelberg 2017
Assuntos:
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC5496839/
https://ncbi.nlm.nih.gov/pubmed/28382417
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/s12687-017-0300-1
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