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De-identified genomic data sharing: the research participant perspective

Combining datasets into larger and separate datasets is becoming increasingly common, and personal identifiers are often removed in order to maintain participant anonymity. Views of research participants on the use of de-identified data in large research datasets are important for future projects, s...

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Bibliographic Details
Published in:J Community Genet
Main Authors: Goodman, Deborah, Johnson, Catherine O., Bowen, Deborah, Smith, Megan, Wenzel, Lari, Edwards, Karen
Format: Artigo
Language:Inglês
Published: Springer Berlin Heidelberg 2017
Subjects:
Online Access:https://ncbi.nlm.nih.gov/pmc/articles/PMC5496839/
https://ncbi.nlm.nih.gov/pubmed/28382417
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/s12687-017-0300-1
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