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De-identified genomic data sharing: the research participant perspective

Combining datasets into larger and separate datasets is becoming increasingly common, and personal identifiers are often removed in order to maintain participant anonymity. Views of research participants on the use of de-identified data in large research datasets are important for future projects, s...

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Bibliographische Detailangaben
Veröffentlicht in:J Community Genet
Hauptverfasser: Goodman, Deborah, Johnson, Catherine O., Bowen, Deborah, Smith, Megan, Wenzel, Lari, Edwards, Karen
Format: Artigo
Sprache:Inglês
Veröffentlicht: Springer Berlin Heidelberg 2017
Schlagworte:
Online Zugang:https://ncbi.nlm.nih.gov/pmc/articles/PMC5496839/
https://ncbi.nlm.nih.gov/pubmed/28382417
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/s12687-017-0300-1
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