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Your Biobank, Your Doctor?: The right to full disclosure of population biobank findings

The advent of personal genomics companies offering direct translation of scientific data into personal health information, calls into question traditional policies to refuse disclosure of such scientific data to research participants. This seems especially true for population biobanks, as they colle...

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Detalhes bibliográficos
Publicado no:Genom Soc Policy
Main Authors: Bovenberg, J. A., Meulenkamp, T., Smets, E.M., Gevers, J.K.M.
Formato: Artigo
Idioma:Inglês
Publicado em: Springer Berlin Heidelberg 2009
Assuntos:
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC5425046/
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/1746-5354-5-1-55
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